Progress

My quality of life has improved since I’ve started doing things the Bruce Campbell way. I have more good days and actually experience times of that delicious feeling of well being. And it follows that when I have good days I have good nights. I sleep better when I have good days.


It is a discipline, believe me. There are days when I am tempted to abandon the plan and skip my naps and extend myself. But I know now that that would be a big mistake.

One of my major goals is to avoid crashes. They are a major stressor on my body and I don’t do myself any favors by allowing myself to endure them. I believe they exacerbate the illness of Chronic Fatigue Syndrome and prevent recovery. Circumstances may come up in life when I am forced to expend more energy than is healthy for me but as much as possible I want to pace and rest on a regular basis to prevent crashes. I trust that this will result in a steady increase in improved health and recovery.

A few observations:

1) Good pacing and resting allows for that groggy feeling after a nap. When in the throes of the symptoms of Chronic Fatigue Syndrome I never feel groggy, only drained and sick. Groggy and sleepy feels more normal, healthier.

2) I have discovered that there is an art to conserving energy. I have to be constantly creative to find ways to ‘stay within the energy envelope.’ For example, taking my dog for a walk on leash can be very tiring. She pulls me more than I want to go in her doggie quest to vent her energy. Instead I drive to a a dog park or a spot where I can let her run free. I keep treats in my pocket to lure her when she wanders too far away. Thus she has opportunity to run and get the exercise she needs while I can walk slowly and leisurely.

3) I know I am feeling better when I feel motivated. Motivation is linked to energy and zest for life. When I lack motivation it is a sign that I am not getting enough rest.

4) Another sign of health is the enjoyment of music. Music is merely noise when I feel sick.

4) I need to find ways to help friends and family understand my inability to keep up with them. Most of the time I appear healthy and they don’t have a clue as to the pain I am experiencing.

After ten years I am finally learning to accept this illness. Not that I won’t continue to search for healing but I have learned that to have a sense of well being that I must learn to live within certain constraints. Frequent rest and the acceptance that I am unable to do certain things must be a part of my life. Sometimes this is very hard but at the same time it provides wonderful times of feeling good and normal again. Who wouldn’t want that? And why I have fought it so in the past? There must be some deep psychological reasons. For one, I wrestle against feelings of guilt. Am I being too indulgent by allowing myself all this rest? But my job right now is to get better and that is where I must put my focus.